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Living as a preemie beyond childhood

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August 27th, 2010

I just found this community and decided to join.

I was born at 26 weeks by emergency c-section due to multiple complications such as e-coli and my mother having an incompetent cervix... to name a few. It was a "we take the baby and hopefully save your life, or you both die" situation. I weighed only 1 pound 9 ounces and was 12 inches long. I had a grade 4 brain hemorrhage. and developed cerebral palsy.

The doctors were very pessimistic while informing my parents of my seemingly bleak future. It was said that I would be blind, deaf, never be able to do anything for myself, and basically be in a vegetative state for my entire life. That was, if I survived, and the chances of that happening were said to be less than 1 percent. They actually suggested to my parents that they "take no life saving measures"... they said I would be better off dead, because I would have "no quality of life whatsoever."

It was then discovered that I had a condition known as hydrocephalus. Meaning that  my body did not have the ability to drain the buildup of fluid and blood around her brain, so my brain was quite literally being crushed. Therefore, I have had a ventricular shunt since birth.

July 29th, 2010

Some Hope

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Pan Am
I was born six weeks early. I spent weeks in the incubator. My mother had spent the majority of her pregnacy on bed rest.

Now, sixteen years later I am mostly healthy my biggest complaint is vision problems which are corrected by glassess. I have little hand eye co-ordination and no skills in any from of visual or musical art but I can write and am ok at drama. That is supposedly from the hemispheres of my brains  not being in sync because I was born early. 

I am  however  and always have been in the highest maths, science and english classes at school I also skipped year 6 when I moved countries. I'm mostly happy.

I am left-handed which is common in premies.

And, I am always early for things. I run on fifteen minutes a head of everyone else time.

I hope I offer some sort of hope to other premmies and parents of premmies. We can go on to be great.

June 14th, 2009

i'm new.

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Hi,
I was born three and a half months premature. I have ROP and still have coordination problems from being premature. I was 13 inches long and 2 or three pounds when I was born. I had seizures that I grew out of, but I had them when I was little. I remember having to take a med for them. I had behavior issues when I was a kid and I've read a study recently, that said that premature babies can have those as a result of prematurity. My parents said that I screamed and cried for an hour every night and was pretty much inconsolable during that time period. It was pretty much around the same time every night from eight or nine every night or something. I remember having to have occupational therapy as well as speech therapy when I was younger. I talked very slow and had problems with opening things and zipping and buttoning things and snapping snaps. I still have problems with my grip and it's not as strong as a normal person's. I didn't learn how to tie my shoes until I was in the fourth grade and I had to go through Kindergarten twice because I didn't want to learn how to read. It was too hard for me. I had to have lots of tutering help in the summer, trying to learn how to read and stuff. Even so, I was in the sixth grade or so before I finally mastered Braille and had all my contractions down and didn't confuse them with others.
Anyway, that's just a little bit about me growing up as a preemie. if you'd like some more members, you might want to post an add for this community to the blind and deaf communities and also maybe a Cp one or two.
Take Care,
Dawnielle

February 28th, 2009

(no subject)

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bleeding
Hi!
I'm the creator/moderator of this community.  As a former preemie (10 weeks early), now 21, I'm just beginning to explore this piece of my identity.  Looking around, I found a significant lack of resources for adult preemies, so I'd like to create a dialogue here.  Please bring questions, stories, observations, and an open mind.
Best, Jules.
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